Adventures in KAndylaND
Crash Central
by Christy
Like I’ve said in earlier posts, we seemed to be returning to normal. Then we get too comfortable with that notion and diabetes likes to rear it’s ugly head once again. Katie had a huge spike higher than I thinkI’ve ever seen. . .
The Conundrum and the Experiment
by Christy
a cross-post from my other blog Having 2 children with a rare type of diabetes and a history of Type 2 diabetes in both mine and my husband’s family, you would think we would eat a very healthy diet. Wrong! …
Andy
babies with diabetes
baby on insulin pump
DEND syndrome
Developmental Delay
developmental delays
Developmentally Delayed
Gluten/Casein Free
Glyburide
Healthy Eating
Infant on Insulin Pump
Infant with Diabetes
Katie
medication
monogenic diabetes
Neonatal Diabetes
Rare Disease
Special Needs Parenting
Returning to “Normal”
by Christy
We are finally done with the antibiotics and infections are all cleared up. Blood sugars are starting to rise again so doses of glyburide are starting to slowly increase. I know after all this time that I shouldn’t worry too much about lows, . . .
When Diabetes Doesn’t Make Sense
by Christy
Well, I have to say, after 4 plus years of dealing with glyburide, I thought I was beginning to understand how my kids’ bodies work. I didn’t think anything could catch me off guard. However, Diabetes in general does things to a body that even doctors still can’t explain.
Snow Tickles
by Christy
As adults, we have all probably experienced snow falling at one time or another in our lives. But I never gave much thought to all of the sensations that go along with experiencing snow for the first time. That all changed today when Andy and I stood waiting for the bus.
Parenthood Episode Rings True
by Christy
I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight. Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.
6 Things About Diabetes – The Neonatal Side
by Christy
November 9, 2010 is the 6th annual D-Blog Day as created by a fellow diabetes blogger, Gina Capone. This year is my first year participating and she has asked us to tell 6 things about diabetes we want others to …
Moving (and other life events)
by Christy
So it’s been a few months since I’ve posted and a LOT has happened in those few months. Andy became almost completely potty trained in August just before he began Kindergarten. Katie celebrated her first birthday. Both kids increased their …
The Never Ending Hallway : Potty Training the 5 Year Old
by Christy
Warning: There may be graphic details in this post. Read at your own risk. It’s been a while since I’ve posted and there is good reason. Our lives have been really crazy in the last few months. Andy graduated preschool …
Andy
Andy's Story
ASD
Autism
babies with diabetes
DEND syndrome
Developmental Delay
developmental delays
Developmental Milestones
Developmentally Delayed
monogenic diabetes
Neonatal Diabetes
Potty training
Potty Training and Autism
Potty Training the Special Needs Child
Rare Disease
SPD
Special Needs Parenting
therapy
The Dilemma of ER Visits
by Christy
One of the worst parts of having a child with a rare disease is the dilemma of having to take that child to a new doctor when there is an emergency. Andy fell off a chair on Friday night and …
Katie’s weight
by Christy
I know for most parents, and mothers especially, the months of watching the scale move up while they’re pregnant is replaced by watching the scale move up when their baby is born. Due to the recommendations from the American Pediatric …
Andy’s Story: Part II : The Hospital
by Christy
It is late tonight and I have just come to the end of three very exciting days where I have seen great improvement in Andy’s behavior and communication. But that won’t make sense if I don’t tell the resthis story . . .
