Adventures in KAndylaND

How Do You Measure Success?

by Christy
I can’t say how most parents measure how they are successful as a parent, but for us, being parents of two children with diabetes, our success is measured in small and unusual ways.  The most obvious success is that our children are alive every day when we wake up.
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The Good, the Bad, and the Ugly

The Good, the Bad, and the Ugly

by Christy
Katie has discovered her hands!  Looking through a babies eyes is so amazing.  How is it that something so simple as looking at one’s hands, turning them over, back and forth, can be so entertaining?  She hasn’t quite figured out what to do with them yet, but she gets them to her mouth every once in a while and giggles and coos because I get so excited saying “good job!”.
Andy Autism Developmental Delay developmental delays Developmental Milestones Developmentally Delayed Katie medication monogenic diabetes Neonatal Diabetes Potty training Rare Disease Special Needs Parenting
Background of a baby with the title Developmental Milestones in Neonatal Diabetes overlaying the picture. Logo of Babies with Diabetes

Developmental Milestones

by Christy Vacchio
It’s amazing how fast 3 months go by.  It seems like just yesterday, we were welcoming our little baby girl Katie into this world.  Now she is 3 months old and so far seems to be developing normally.
Andy babies with diabetes DEND syndrome Developmental Delay Developmental Milestones Katie monogenic diabetes Neonatal Diabetes Rare Disease Special Needs Parenting
Baby with bruised heels due to blood sugar checks

Highs and Lows with New Medicine

by Christy Vacchio
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on Glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . .
babies with diabetes DEND syndrome Glyburide Infant with Diabetes Katie medication monogenic diabetes Neonatal Diabetes new treatments Rare Disease research Special Needs Parenting