Adventures in KAndylaND
Katie’s New Diagnosis
by Christy
This is an overdue post. We’ve now been in the Cincinnati area for over a year and we have been slowly getting the kids settled into their new team of doctors at Cincinnati Children’s. After meeting with the endocrinologist, neurologist …
Update
by Christy
I know it’s been a while since I’ve done a major update. Life has happened. I have been back at work full time since August of 2014 and had a part time job that felt like a full time job …
Miss Independence
by Christy
The ear-piecing scream echoes in my head as I sit at the table watching her eat. She has a sweet angel-face on right now, but I know, like a light switch, she can easily flip on the face of discontent …
At Last – Potty Training Success!
by Christy
Last year at this time we were very discouraged and at a loss for what to do. You see, Andy was sort of potty trained at around 5 years old but had some regression once he started having his …
Hopes and Fears Pop Up in Dreams
by Christy
I know that dreams can have a lot of meaning and sometimes they are a little mysterious and hard to understand. Then at other times, what you dream is very straightforward and hits you in the face. Last night I …
Developmental Ups and Downs
by Christy
We were dealt a blow yesterday. Katie is behind. When Andy was on insulin so many years ago, we knew he was behind. He wasn’t doing anything he should be doing right on track. As a parent, you always want the best for your child, but you also instinctively “know” when something is wrong.
Cheers and Fears
by Christy
As I walked out the door with Andy this morning, I hesitantly let go of his hand. Just yesterday I was telling Dan how we had been practicing every morning with walking next to Mommy instead of holding my hand …
The Conundrum and the Experiment
by Christy
a cross-post from my other blog Having 2 children with a rare type of diabetes and a history of Type 2 diabetes in both mine and my husband’s family, you would think we would eat a very healthy diet. Wrong! …
Andy
babies with diabetes
baby on insulin pump
DEND syndrome
Developmental Delay
developmental delays
Developmentally Delayed
Gluten/Casein Free
Glyburide
Healthy Eating
Infant on Insulin Pump
Infant with Diabetes
Katie
medication
monogenic diabetes
Neonatal Diabetes
Rare Disease
Special Needs Parenting
Returning to “Normal”
by Christy
We are finally done with the antibiotics and infections are all cleared up. Blood sugars are starting to rise again so doses of glyburide are starting to slowly increase. I know after all this time that I shouldn’t worry too much about lows, . . .
When Diabetes Doesn’t Make Sense
by Christy
Well, I have to say, after 4 plus years of dealing with glyburide, I thought I was beginning to understand how my kids’ bodies work. I didn’t think anything could catch me off guard. However, Diabetes in general does things to a body that even doctors still can’t explain.
Snow Tickles
by Christy
As adults, we have all probably experienced snow falling at one time or another in our lives. But I never gave much thought to all of the sensations that go along with experiencing snow for the first time. That all changed today when Andy and I stood waiting for the bus.
Parenthood Episode Rings True
by Christy
I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight. Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.
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