Adventures in KAndylaND
Closing the Gap: The First Two Weeks on Carbamazepine
by Christy
We are now at the end of the second week on Andy’s new medicine, Carbamazepine (Tegratol), and so far, we have had no adverse side effects. We started him on a small dose of 2.5 ml (50 mg) twice per …
Crash Central
by Christy
Like I’ve said in earlier posts, we seemed to be returning to normal. Then we get too comfortable with that notion and diabetes likes to rear it’s ugly head once again. Katie had a huge spike higher than I thinkI’ve ever seen. . .
The Conundrum and the Experiment
by Christy
a cross-post from my other blog Having 2 children with a rare type of diabetes and a history of Type 2 diabetes in both mine and my husband’s family, you would think we would eat a very healthy diet. Wrong! …
Andy
babies with diabetes
baby on insulin pump
DEND syndrome
Developmental Delay
developmental delays
Developmentally Delayed
Gluten/Casein Free
Glyburide
Healthy Eating
Infant on Insulin Pump
Infant with Diabetes
Katie
medication
monogenic diabetes
Neonatal Diabetes
Rare Disease
Special Needs Parenting
Returning to “Normal”
by Christy
We are finally done with the antibiotics and infections are all cleared up. Blood sugars are starting to rise again so doses of glyburide are starting to slowly increase. I know after all this time that I shouldn’t worry too much about lows, . . .
When Diabetes Doesn’t Make Sense
by Christy
Well, I have to say, after 4 plus years of dealing with glyburide, I thought I was beginning to understand how my kids’ bodies work. I didn’t think anything could catch me off guard. However, Diabetes in general does things to a body that even doctors still can’t explain.
6 Things About Diabetes – The Neonatal Side
by Christy
November 9, 2010 is the 6th annual D-Blog Day as created by a fellow diabetes blogger, Gina Capone. This year is my first year participating and she has asked us to tell 6 things about diabetes we want others to …
The Good, the Bad, and the Ugly
by Christy
Katie has discovered her hands! Looking through a babies eyes is so amazing. How is it that something so simple as looking at one’s hands, turning them over, back and forth, can be so entertaining? She hasn’t quite figured out what to do with them yet, but she gets them to her mouth every once in a while and giggles and coos because I get so excited saying “good job!”.
Highs and Lows with New Medicine
by Christy Vacchio
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on Glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . .
