Adventures in KAndylaND
Towers of Pillows
by Christy
Anybody who has a child on the spectrum or with SPD probably took one peak at that title and shook their head in understanding. “Yep, my kid does that too” you’re saying. Sometimes I look at Andy and just think, …
Katie’s New Diagnosis
by Christy
This is an overdue post. We’ve now been in the Cincinnati area for over a year and we have been slowly getting the kids settled into their new team of doctors at Cincinnati Children’s. After meeting with the endocrinologist, neurologist …
Hopes and Fears Pop Up in Dreams
by Christy
I know that dreams can have a lot of meaning and sometimes they are a little mysterious and hard to understand. Then at other times, what you dream is very straightforward and hits you in the face. Last night I …
Developmental Ups and Downs
by Christy
We were dealt a blow yesterday. Katie is behind. When Andy was on insulin so many years ago, we knew he was behind. He wasn’t doing anything he should be doing right on track. As a parent, you always want the best for your child, but you also instinctively “know” when something is wrong.
Cheers and Fears
by Christy
As I walked out the door with Andy this morning, I hesitantly let go of his hand. Just yesterday I was telling Dan how we had been practicing every morning with walking next to Mommy instead of holding my hand …
Snow Tickles
by Christy
As adults, we have all probably experienced snow falling at one time or another in our lives. But I never gave much thought to all of the sensations that go along with experiencing snow for the first time. That all changed today when Andy and I stood waiting for the bus.
Parenthood Episode Rings True
by Christy
I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight. Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.
Moving (and other life events)
by Christy
So it’s been a few months since I’ve posted and a LOT has happened in those few months. Andy became almost completely potty trained in August just before he began Kindergarten. Katie celebrated her first birthday. Both kids increased their …
The Never Ending Hallway : Potty Training the 5 Year Old
by Christy
Warning: There may be graphic details in this post. Read at your own risk. It’s been a while since I’ve posted and there is good reason. Our lives have been really crazy in the last few months. Andy graduated preschool …
Andy
Andy's Story
ASD
Autism
babies with diabetes
DEND syndrome
Developmental Delay
developmental delays
Developmental Milestones
Developmentally Delayed
monogenic diabetes
Neonatal Diabetes
Potty training
Potty Training and Autism
Potty Training the Special Needs Child
Rare Disease
SPD
Special Needs Parenting
therapy
The Dilemma of ER Visits
by Christy
One of the worst parts of having a child with a rare disease is the dilemma of having to take that child to a new doctor when there is an emergency. Andy fell off a chair on Friday night and …
The Good, the Bad, and the Ugly
by Christy
Katie has discovered her hands! Looking through a babies eyes is so amazing. How is it that something so simple as looking at one’s hands, turning them over, back and forth, can be so entertaining? She hasn’t quite figured out what to do with them yet, but she gets them to her mouth every once in a while and giggles and coos because I get so excited saying “good job!”.
