Book Recommendations

A collage of books about rare disease and special needs. The purple banner in the middle reads "Rare Disease Book Recommendations" with The Sidetracked Parent logo to the side. The books shown are Unexpected Blessings by Sandra Peoples, The Boy Who Loved Windows by Patricia Stacey, Extraordinary! A Book for Children with Rare Diseases by Evren and Kara Ayik, and Loving Large by Patti M. Hall.

Do you like to read? Do you want some books about families with rare diseases, disabled kids or adults, or just a book for your kid to read about rare diseases or what it's like to live with a disability? Here are some recommendations for books to read. We have them listed in categories to help you find the perfect book(s) for you and your family. If you have a book you would like added to this list, please contact us to have it added to our list.


Book Cover of Unexpected Blessings by Sandra Peoples. The photo on the cover shows two children coloring a picture of the world.

Unexpected Blessings by Sandra Peoples

Book cover of The Boy Who Loved Windows by Patricia Stacey. The photo on the cover shows the back of a boy facing a window looking out onto a cloudy sky.

The Boy Who Loved Windows by Patricia Stacey


Book Cover of Loving Large by Patti M Hall. The cover photo shows a white background with green leaves vining around the words.

Loving Large by Patti M Hall

Book Cover of Chasing My Cure: A Doctor's Race to Turn Hope Into Action shows the main title in red with a male doctor in blue scrubs blurred behind the title. Book is by David Fajgenbaum

Chasing My Cure



Devotionals and Inspirational Books

Books for Kids

Book Cover of Extraordinary! by Evren and Kara Ayik and illustrated by Ian Dale. The cover illustration shows a boy holding a red puzzle piece with several children in the background

Extraordinary by Evren and Kara Ayik


Fiction Books by Disabled Authors

Fiction Books with Disabled Characters