Adventures in KAndylaND
August: Our Family's Diaversary Monthby Christy Vacchio
For every parent, the birth of their child is a significant month. But for the parent of a child with a rare disease, or a significant diagnosis, the month of diagnosis is also a time that is forever remembered. For some, especially in the diabetes world, we call this our "Diaversary". August is always a hard month for us because both of our children were diagnosed with a rare form of diabetes that month. Neonatal Diabetes
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Closing the Gap: Is Gene Therapy Our Future?by Christy
There are two thoughts that ran through my mind when our doctor told us that our son had a rare genetic mutation: Which one of us gave it to him (or was it both of us)? – and Why can’t … Continue reading →
Developmental Ups and Downsby Christy
We were dealt a blow yesterday. Katie is behind. When Andy was on insulin so many years ago, we knew he was behind. He wasn’t doing anything he should be doing right on track. As a parent, you always want the best for your child, but you also instinctively “know” when something is wrong.
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Parenthood Episode Rings Trueby Christy
I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight. Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.
ASD Autism DEND syndrome Developmental Delay developmental delays Developmentally Delayed monogenic diabetes Neonatal Diabetes Rare Disease research Special Needs Parenting
6 Things About Diabetes – The Neonatal Sideby Christy
November 9, 2010 is the 6th annual D-Blog Day as created by a fellow diabetes blogger, Gina Capone. This year is my first year participating and she has asked us to tell 6 things about diabetes we want others to …
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Highs and Lows with New Medicineby Christy Vacchio
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on Glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . .
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