Adventures in KAndylaND

Moving (and other life events)

by Christy
So it’s been a few months since I’ve posted and a LOT has happened in those few months.  Andy became almost completely potty trained in August just before he began Kindergarten.  Katie celebrated her first birthday.  Both kids increased their …
Andy ASD Autism babies with diabetes DEND syndrome Developmental Delay developmental delays Developmental Milestones Developmentally Delayed Katie monogenic diabetes Moving with Special Needs Child Neonatal Diabetes Rare Disease Special Needs Parenting

The Never Ending Hallway : Potty Training the 5 Year Old

by Christy
Warning:  There may be graphic details in this post.  Read at your own risk. It’s been a while since I’ve posted and there is good reason.  Our lives have been really crazy in the last few months.  Andy graduated preschool …
Andy Andy's Story ASD Autism babies with diabetes DEND syndrome Developmental Delay developmental delays Developmental Milestones Developmentally Delayed monogenic diabetes Neonatal Diabetes Potty training Potty Training and Autism Potty Training the Special Needs Child Rare Disease SPD Special Needs Parenting therapy

The Dilemma of ER Visits

by Christy
One of the worst parts of having a child with a rare disease is the dilemma of having to take that child to a new doctor when there is an emergency.  Andy fell off a chair on Friday night and …
Andy Andy's Story ASD Autism babies with diabetes DEND syndrome Developmental Delay developmental delays Developmentally Delayed Glyburide monogenic diabetes Neonatal Diabetes Rare Disease Special Needs Parenting

Katie’s weight

by Christy
I know for most parents, and mothers especially, the months of watching the scale move up while they’re pregnant is replaced by watching the scale move up when their baby is born.  Due to the recommendations from the American Pediatric …
babies with diabetes DEND syndrome Developmental Delay developmental delays Developmental Milestones Developmentally Delayed Glyburide Katie monogenic diabetes Neonatal Diabetes Rare Disease Special Needs Parenting Uncategorized
The Good, the Bad, and the Ugly

The Good, the Bad, and the Ugly

by Christy
Katie has discovered her hands!  Looking through a babies eyes is so amazing.  How is it that something so simple as looking at one’s hands, turning them over, back and forth, can be so entertaining?  She hasn’t quite figured out what to do with them yet, but she gets them to her mouth every once in a while and giggles and coos because I get so excited saying “good job!”.
Andy Autism Developmental Delay developmental delays Developmental Milestones Developmentally Delayed Katie medication monogenic diabetes Neonatal Diabetes Potty training Rare Disease Special Needs Parenting
Background of a baby with the title Developmental Milestones in Neonatal Diabetes overlaying the picture. Logo of Babies with Diabetes

Developmental Milestones

by Christy Vacchio
It’s amazing how fast 3 months go by.  It seems like just yesterday, we were welcoming our little baby girl Katie into this world.  Now she is 3 months old and so far seems to be developing normally.
Andy babies with diabetes DEND syndrome Developmental Delay Developmental Milestones Katie monogenic diabetes Neonatal Diabetes Rare Disease Special Needs Parenting