Adventures in KAndylaND
Returning to “Normal”
by Christy
We are finally done with the antibiotics and infections are all cleared up. Blood sugars are starting to rise again so doses of glyburide are starting to slowly increase. I know after all this time that I shouldn’t worry too much about lows, . . .
When Diabetes Doesn’t Make Sense
by Christy
Well, I have to say, after 4 plus years of dealing with glyburide, I thought I was beginning to understand how my kids’ bodies work. I didn’t think anything could catch me off guard. However, Diabetes in general does things to a body that even doctors still can’t explain.
Snow Tickles
by Christy
As adults, we have all probably experienced snow falling at one time or another in our lives. But I never gave much thought to all of the sensations that go along with experiencing snow for the first time. That all changed today when Andy and I stood waiting for the bus.
Parenthood Episode Rings True
by Christy
I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight. Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.
Moving (and other life events)
by Christy
So it’s been a few months since I’ve posted and a LOT has happened in those few months. Andy became almost completely potty trained in August just before he began Kindergarten. Katie celebrated her first birthday. Both kids increased their …
The Never Ending Hallway : Potty Training the 5 Year Old
by Christy
Warning: There may be graphic details in this post. Read at your own risk. It’s been a while since I’ve posted and there is good reason. Our lives have been really crazy in the last few months. Andy graduated preschool …
Andy
Andy's Story
ASD
Autism
babies with diabetes
DEND syndrome
Developmental Delay
developmental delays
Developmental Milestones
Developmentally Delayed
monogenic diabetes
Neonatal Diabetes
Potty training
Potty Training and Autism
Potty Training the Special Needs Child
Rare Disease
SPD
Special Needs Parenting
therapy
Andy’s Story: Part III : Insulin Injections
by Christy
So after a long week in the hospital and 3 days of crash courses in how to check blood sugars, give shots, and count carbs, we were sent home with our baby boy. How do you explain how hard it …
The Dilemma of ER Visits
by Christy
One of the worst parts of having a child with a rare disease is the dilemma of having to take that child to a new doctor when there is an emergency. Andy fell off a chair on Friday night and …
Katie’s weight
by Christy
I know for most parents, and mothers especially, the months of watching the scale move up while they’re pregnant is replaced by watching the scale move up when their baby is born. Due to the recommendations from the American Pediatric …
How Do You Measure Success?
by Christy
I can’t say how most parents measure how they are successful as a parent, but for us, being parents of two children with diabetes, our success is measured in small and unusual ways. The most obvious success is that our children are alive every day when we wake up.
The Good, the Bad, and the Ugly
by Christy
Katie has discovered her hands! Looking through a babies eyes is so amazing. How is it that something so simple as looking at one’s hands, turning them over, back and forth, can be so entertaining? She hasn’t quite figured out what to do with them yet, but she gets them to her mouth every once in a while and giggles and coos because I get so excited saying “good job!”.
Developmental Milestones
by Christy Vacchio
It’s amazing how fast 3 months go by. It seems like just yesterday, we were welcoming our little baby girl Katie into this world. Now she is 3 months old and so far seems to be developing normally.
