We are now at the end of the second week on Andy’s new medicine, Carbamazepine (Tegratol), and so far, we have had no adverse side effects. We started him on a small dose of 2.5 ml (50 mg) twice per …
Andy Andy's Story carbamazepine medication monogenic diabetes Neonatal Diabetes new treatments Rare Disease
by Christy Vacchio
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on Glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . .
babies with diabetes DEND syndrome Glyburide Infant with Diabetes Katie medication monogenic diabetes Neonatal Diabetes new treatments Rare Disease research Special Needs Parenting