Long Time Gone

Wow! I knew I had neglected this blog for a while but had no idea it had been nearly two years! I decided it was time to kick things into gear and start blogging again about our journey. So many things have happened over the last two years and I may not totally back track to all of the little daily ins and outs. I will, however, attempt to hit some major milestones along the way.

So come along with me and reminisce about our highs and lows with this rare disease. It doesn’t always kick our butts. Sometimes there are sweet moment with my 2 sweet babies.