{"product_id":"twice-rare-signed-advocacy-bundle","title":"Twice Rare: Signed Advocacy Bundle","description":"\u003cp\u003e\u003cstrong\u003ePREORDER: This is a signed preorder copy. Expected to ship in late September\/early October 2026.\u003c\/strong\u003e\u003c\/p\u003e\n\u003cp\u003eAt four months old, Andy was dying.\u003c\/p\u003e\n\u003cp\u003eFor weeks, his mother, Christy, had known something was wrong. He was losing weight. Crying constantly. Growing weaker by the day. But every concern she raised had been dismissed - until the night his tiny body began shutting down. Christy and her husband, Dan, were thrust into a world of medical uncertainty they never imagined they would have to navigate.\u003c\/p\u003e\n\u003cp\u003eThen, four years later, their daughter, Katie, was born. When familiar signs began to appear, Christy recognized what others did not. History was repeating itself. But this time, she knew what was at stake. And she refused to wait for someone else to see it.\u003c\/p\u003e\n\u003cp\u003eThat first medical crisis with Andy began a twenty-year journey filled with medical mysteries, unexpected discoveries, and questions no one seemed able to answer. Together, Christy and Dan learned to navigate medical and education systems that were rarely designed for children like theirs. They searched for answers when the experts were uncertain, found community in unexpected places, and built a life around two children whose needs rarely fit neatly into the systems meant to support them.\u003c\/p\u003e\n\u003cp\u003eTwice Rare is an intimate memoir about family, motherhood, rare disease, disability, and the transformation that begins when ordinary parents learn to trust what they know and discover the power of fighting together to ensure their children are seen.\u003c\/p\u003e\n\u003cp\u003e\u003cstrong\u003eWhat Is Included:\u003c\/strong\u003e\u003cbr\u003e\u003c\/p\u003e\n\u003cul\u003e\n\u003cli\u003e\u003cstrong\u003e6 x 9 paperback copy of \u003cem\u003eTwice Rare, \u003c\/em\u003esigned by the author\u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\n\u003cstrong\u003ePersonalize my copy (optional)\u003c\/strong\u003e\n\u003cul\u003e\n\u003cli\u003e\u003cstrong\u003eName you'd like the book inscribed to: _______________\u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eLeave blank if you'd prefer the author's signature only.\u003c\/strong\u003e\u003c\/li\u003e\n\u003c\/ul\u003e\n\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eExclusive Advocate Fearlessly sticker\u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\n\u003cem\u003e\u003cstrong\u003eTwice\u003c\/strong\u003e\u003c\/em\u003e\u003cstrong\u003e Rare bookmark\u003c\/strong\u003e\u003cstrong\u003e\u003c\/strong\u003e\n\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eAdvocate Fearlessly keepsake card\u003c\/strong\u003e\u003c\/li\u003e\n\u003c\/ul\u003e","brand":"Lepidoptera Codex","offers":[{"title":"Default Title","offer_id":44498692079681,"sku":"TR-PB-SIGNED-BNDL","price":39.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0016\/0897\/4401\/files\/3B0AD4DB-50D4-4B5E-BA72-3E68930780EE_6bbb45ba-8650-4bfe-843e-bb1fe83d4ca9.png?v=1788109921","url":"https:\/\/thesidetrackedparent.com\/products\/twice-rare-signed-advocacy-bundle","provider":"The Sidetracked Parent","version":"1.0","type":"link"}